General Practice Data for Planning and Research data collection
The purpose of the data collection is to support the provision of general practice data for planning and research.
All data collected will be pseudonymised by GP system suppliers on behalf of their GP practices before the data is sent into NHS Digital, the national custodian for health and care information. Data will only be made available by NHS Digital in a safe and secure way to trusted organisations to meet approved health and care purposes including public health including COVID-19, the planning and commissioning of services, or policy development and research.
The new collection is designed to reduce the number of requests for access to data received by general practice. It will provide the NHS with a modern replacement for the General Practice Extraction Service (GPES), delivering new functionality and capacity to cater to the increasing demand for GP data. Better data drives more accurate and detailed planning, along with allowing detailed and credible research to take place, facilitating greater benefit across the NHS and social care.
NHS Digital has engaged with the British Medical Association (BMA), Royal College of GPs (RCGP) and the National Data Guardian (NDG) to ensure relevant safeguards are in place for patients and GP practices.
The data collection will include data for all patients currently registered with a general practice. The data of those patients who die after their general practice has commenced flowing this data collection will also be included.
GP system suppliers will remove out of scope items such as name and address and pseudonymise the identifiable data at source before it leaves the control of the general practice. This data collection will collect coded and structured data within but not limited to the following groups in GP medical record systems:
- patient demographics
- diagnoses and symptoms
- observations and encounters
- test results
- staff details
- medications, allergies and immunisations
- referrals and recalls
For the avoidance of doubt, no free text notes, documents or images will be collected and the data of patients with a Type 1 Opt-out (also known as a Type 1 Objection) registered in their record before 30 June 2021 will also not be collected.
More information is available on the General Practice Data for Planning and Research data collection on the NHS Digital website.
GDPR Transparency Information
As NHS Digital is collecting personal data from general practices through this collection, general practices have a legal duty to be transparent and to provide patients with transparency information under General Data Protection Regulation (GDPR) about the data they are sharing with NHS Digital. General practices need to update their own transparency notices (which are also known as privacy notices) on their websites to include details of this collection. NHS Digital has produced a general practice privacy notice which GPs are able to link to from your current privacy information.
NHS Digital also has a transparency notice for the new General Practice Data for Planning and Research data collection, explaining how their legal duties and responsibilities align with GDPR and information on the legal basis for collecting, analysing and disseminating the data.
You are receiving this communication because you are listed as the main contact by the Care Quality Commission (CQC) for Primary Medical Services. If you need to amend these details, please contact the CQC directly